Zero Day – Infusion of Cells

June 17, 2013

Well folks, today’s the big day.  My docs just notified me that they will be infusing my “super cells” back into my body around 12-noon EST today.  This is the climax of everything that we have been preparing for.  The amazing/scary part about this, and the reason we call it the “spider man treatment”, is […]

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The art of asking

June 11, 2013

This TED Talk explains our predicament/experience with cancer perfectly!   It has been both extremely difficult and truly amazing.  We thank you from the bottom of our hearts. Warning!  slightly NSFW.  

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Good News!

June 11, 2013

Good news! I just got the green light, my cells are still active in the lab! So this means 2 different chemo infusions, starting at 5pm EST tonight. Thanks for all the well wishes and prayers.

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No news is good news!

June 11, 2013

Quick update: no news on how my cells are doing yet, but I expect to hear by noon EST today.  If cells are good I will start 5 days of chemo tonight.  Thanks for all the prayers!

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Well dude, we just don’t know

June 8, 2013

In case you haven’t figured out by now, Kevin and I are big Lebowski fans.  For whatever strange reason, we find ourselves wandering back to that odd little 1998 Cohen brothers film.  Sure, it’s filled with a stupid amount of foul language and after watching it probably about 30 times, I’m still not quite sure […]

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We are Easter People and a request for help

May 21, 2013

Oh, it finally feels like Easter is here!  First, the really good news, then an explanation. Kevin is back on the TIL therapy trial!  He checks in in a little less than ten days (evening of May 30) and the actual treatment will begin June 1st.  This is just under one year from when we […]

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And yet…

May 14, 2013

I spent Mother’s Day recovering from a cross-country flight by myself with a two and three year old, and then coming down with pneumonia. So that was awesome. And yet I am reminded of a valuable saying. “Be kind, for everyone you know is fighting a hard battle.” I haven’t written in nearly three months. […]

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Update 2.0

March 31, 2013

Sorry for the late update folks.  My current treatment plan consists of nothing more than taking pills twice a day.  I have been taking Vemurafenib for a couple of months now and I am definitely responding!  (responding is doctor-speak for “it’s working”).   My tumors have reduced significantly and I am back working full time. My main side […]

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It was all going to be so perfect – thoughts on giving up for lent

February 13, 2013

I’ve been thinking about where Kevin and I “should” have been right now.  Kevin should have been a week into his TIL therapy treatment in Washington D.C.  This was to be a huge battle, the biggest yet.  It was to involve chemotherapy, IL-12, and various other forms of torture intended to give him his best […]

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How to let your little light shine and an update on Kevin

February 11, 2013

Hi friends, I am horribly behind on updating the blog because I don’t even know where to begin!  So many things have happened so fast, but we have gratefully had a few slow days and have been catching our breath and enjoying slowing down so I thought I’d try to share at least a little […]

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